The following text is from one of our community members, Mrs. Karla Richardson.
Hi Everyone, the following is what our research foundation is doing for Rare Disease Day, but this can be done for all 7,000 Rare Diseases. Feel free to join in with your own rare disease listed.
“As an effort to raise awareness for Rare Disease Day 2/28, the IHRF is putting a face on this illness. For the month of February, we’re asking you to take a picture of yourself holding a sign that says:
I am the face of intracranial hypertension (IH).
(or “My Daughter/Son/Friend has…”)
Rare Disease Day 2-28-11