Many Advocates, Industry, Parents, Advocacy Organizations have participated in the first in a series of Rare Disease reports being produced by Media Planet. This first report will be seen by over 4 million readers of the Washington Post, available on newsstands around the country today.
Make sure and pass this along. It’s an important read and one that we want to make sure gets in the hands of as many people as possible!!
The Global Genes Project team was honored to participate in this project. We look forward to participating in the upcoming Rare Disease Reports with our partner Media Planet.