The music was loud and the crowd made noise for an important cause. “Rock Rare Disease”, a music benefit to raise awareness for Rare Disease rocked Wrigleyville on July 23rd.
Trace Bar generously hosted this unique and exclusive fundraiser which brought music fans out on a warm summer night for a non-stop jam session, which raised $6,000. Two local musical groups, Tanglewood Tales followed by Dr. Flint’s Nitro Burnin Voodoo Rummies, opened for New York based musician, Jesse Malin and his band, the St. Mark’s Social.
There are approximately 7,000 distinct rare diseases worldwide, and many appear early in life. About 30 percent of children with rare diseases will die before reaching their fifth birthday.
Bridget Kennicott, now 6 years old, and the daughter of the Barrington family that created the beneficiary Foundation, Hope4Bridget, is one of five children in Chicagoland who suffer with Batten Disease. This disorder is a fatal, degenerative, inherited disorder of the nervous system.
CorDynamics (https://www.cordynamics.com/) and Lundbeck Pharmaceuticals (https://www.lundbeck.com/) were the sponsors of “Rock Rare Disease” which was also supported generously with donations by local Chicago businesses including D’Agostino’s, El Jardin and 1800 Tequila.
For more coverage on this incredible event and the amazing women who are rocking it for rare disease – head to https://www.dailyherald.com/article/20110808/news/708069736/ Keep Rockin it!!!