2012 Patient Advocacy Summit – Session #2 – Accessing the RARE Science

An introduction to NIH, including NCATS, RDCRN, TRND, etc. followed by a discussion of the types of registries and how they can be best used by RARE disease organizations.

Panelists:

David Eckstein, Senior Health Scientist Administrator, NIH-NCATS-ORDR (Office of RARE Disease Research)
Ben Heywood, President & Co-Founder, PatientsLikeMe

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