2012 Patient Advocacy Summit – Session #2 – Accessing the RARE Science

An introduction to NIH, including NCATS, RDCRN, TRND, etc. followed by a discussion of the types of registries and how they can be best used by RARE disease organizations.


David Eckstein, Senior Health Scientist Administrator, NIH-NCATS-ORDR (Office of RARE Disease Research)
Ben Heywood, President & Co-Founder, PatientsLikeMe

< Go back to Session #1 – RARE Political Advocacy
Watch Session #3 – RARE Foundation Business Models >