Roy and Reed Zeighami, couldn’t have articulated it better – why the RARE Disease community needs the ULTRA Act/Fast Act of 2012.

Please join Roy in viewing his two minute video!  And. . . if you feel so compelled, take action!!!

ULTRA Act of 2012 – need your support

Over 90 organizations have signed on to the letters of support.  Will yours be next?

Click here to see the list and read the letter. Visit for more information and to sign on.