Has your family submitted to the “Rare Children’s Storybook Project” yet? Your story could win up to $750 to help with medical costs. The deadline has been extended to January 13.

MarbleRoad who is managing this promotion was awarded an “Empowerment Grant” from Genzyme to hold an online contest within the rare disease community for age-appropriate stories reflecting the perspective of self, sibling, caregiver, or other relevant role in the illness experience and to help facilitate dialogue and understanding for families facing complex illness.

There are two categories for submission. One is picture books for pre-readers ages 0-5 (under 300 words) and the second is early reader books for children 5-7 (under 1300 words). Books should illustrate the perspective of self, sibling, caregiver or other relevant role in the illness experience.

Ten finalists will be chosen from all submissions to receive a video camera to further capture and express their rare story. The final videos will be posted online where the public will be allowed to view and like their favorites.

For more information, go to: https://www.myrarestory.org or follow #myrarestory on Twitter to learn more.

MarbleRoad is a non-profit, 501(c)(3) public charity whose mission is to connect people who have complex illnesses with the resources they need to help them improve their lives.

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