On February 29, 2012, the National Institutes of Health (NIH) will celebrate the fifth annual Rare Disease Day with a day-long celebration and recognition of the various rare diseases research activities supported by the NIH Office of Rare Diseases Research, the NIH Clinical Center, other NIH Institutes and Centers, the Food and Drug Administration’s Office of Orphan Product Development, the National Organization for Rare Disorders and the Genetic Alliance.

Rare Disease Day at NIH (RDD@NIH) will be held in the Clinical Center (Building 10) from 8:30 a.m. to 5:00 p.m. Attendance is free and open to the public.

In addition to the various scheduled talks, we expect to have posters and exhibits from many groups relevant to the rare diseases research community. In association with the Global Genes Project, the NIH encourages all attendees to wear their favorite pair of jeans.

While attendance is free, we would like to know how many people are planning to attend to prepare accordingly. If you would like to display a poster or exhibit, please include that information on your registration form.

Contact Dr. David J. Eckstein at eckstein@od.nih.gov for more information. The NIH Office of Rare Diseases Research encourages all attendees to also plan on attending the Food and Drug Administration’s Rare Disease Day activities on March 1, 2012.

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