I was working in Times Square doing the whole corporate scene and was so tired all the time. I was trying to pretend like I didn’t have this disease and I could be like everyone else.  Any time off I had, I needed to rest, almost to the extreme of not being able to get out of bed on the weekends. It was hard, but I had to step back and step away from the money and reflect what I wanted my life to be. I could make money and never have time or energy to spend it, or I could take care of myself.

I made a bold decision and never looked back. A little while later, an opportunity to work at the Hereditary Neuropathy Foundation (HNF) crossed my path and I jumped at it. It’s been a few hectic months, but the feeling of value to my daily living is worth all the money in the world.

The Hereditary Neuropathy Foundation supports those of us with Charcot Marie Tooth (CMT). With a recent grant from the CDC (Centers for Disease Control), HNF has launched a great website, www.help4cmt.com as a resource center for people with CMT, caregivers and medical professionals. It is growing every day. It is a great resource for me and others affected by CMT to have everything in one place!

I work hard to inspire other CMT patients.  As cliché as it sounds, stay happy. Count your blessings. Be thankful for all the good in your life. Yes- we have our bad days, but we have good days too. Also, do whatever it takes to live the life you want. We only get one life. If that means taking a loan out to get the helios braces so that you can walk, DO IT. If that means taking a different job so you have more time to work out, DO IT. If that means pushing your body a little harder to increase muscle strength, DO IT. Live YOUR life to its fullest, whatever that may be for you.

Laura Moquin
New York

 

2 thoughts on “Living Life to the Fullest with Charcot Marie Tooth (CMT)”

  1. Marianne Vennitti says:

    Helping others, helps us. I so happy you join the fight!
    Bless you,
    Marianne
    Cryoglobulinemia Vasculitis

  2. Brandon Woods says:

    hi my name is Brandon Woods and i was diagnosed 4 years ago with CMT and had just stumbled upon your page. After reading your story i felt inspired to do the things i want to do in life and also give others with the disease hope, hope that they will never feel as though they have to give up are stop trying that they should reach for the stars and not look back. I am currently a sophomore at Western Kentucky University and am a Sociology major with a minor in Criminology i was told i will never be able to become a police officer but what I have come to understand is yes i can that even though I have this disease that it should not stop me from following my dreams and I know in my heart that it wont. You yourself have went above and beyond and no words can fathom the inspiration and proximity of how you have inflicted upon others. I to hope to aspire others to not dismiss for what they have as another faction in they’re life that will stop them from doing whatever it is they wish to do, but to go the distance.
    Thank You for sharing your story and God bless you.

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