I am an adult in my 20’s with a rare disorder called Moebius Syndrome. I am the first in my generation to receive support from the many groups and foundations that exist today. Because of this support, I have been able to meet and share my story with others who share the same disorder.
I have really benefited from the support of others, I am really grateful for having them in my life. So much of what has happened in my life is related to both my disorder and the relationships I have formed with the people that also have Moebius Syndrome.