I have Charcot Marie Tooth Disorder, a nerve disorder which over time causes progressive loss in muscle control. I am manager of Team CMT, a group of athletes dedicated to raising awareness of Charcot Marie Tooth.
As a long distance runner, I will be running the Boston Marathon on April 16, 2012 to raise awareness and funds for the Hereditary Neuropathy Foundation (HDF)and Charcot Marie Tooth.
TEAM CMT ran our first race April 28th last year with 3 members and we now have 74 team members in 16 states. My goal is to get to 100 members by the end of April. Since we have members all over the country we are running races all over.
Three TEAM CMT members ran in the Shamrock Marathon/Half Marathon in Richmond and I will be running again in the Richmond Marathon/half marathon in November.
Every mile is hard won and makes the accomplishment that much sweeter.
I look forward to competing in the USA Paratriathlon National Sprint Triathlon Championship in Austin on May 28th, with hopes another team member with CMT will qualify.