I have Charcot Marie Tooth Disorder, a nerve disorder which over time causes progressive loss in muscle control. I am manager of Team CMT, a group of athletes dedicated to raising awareness of Charcot Marie Tooth.

As a long distance runner, I will be running the Boston Marathon on April 16, 2012 to raise awareness and funds for the Hereditary Neuropathy Foundation (HDF)and Charcot Marie Tooth.

TEAM CMT ran our first race April 28th last year with 3 members and we now have 74 team members in 16 states.  My goal is to get to 100 members by the end of April.  Since we have members all over the country we are running races all over.

Three TEAM CMT members ran in the Shamrock Marathon/Half Marathon in Richmond and I will be running again in the Richmond  Marathon/half marathon in November.

In my blog, I commented on our last race:

Every mile is hard won and makes the accomplishment that much sweeter.

I look forward to competing in the USA Paratriathlon National Sprint Triathlon Championship in Austin on May 28th, with hopes another team member with CMT will qualify.

Chris Wodke
Milwaukee, Wisconsin

4 thoughts on “Charcot Marie Tooth Disorder: Running For My Life”

  1. James says:

    Hi Chris,

    I too have CMT, I am curious of the effects may have had when running with CMT.
    I am must say I am real jealous on one hand but encouraged on the other to see you be able to obtain goal of marathon or just plain be able to run with CMT. The reason why ask about the effects is that I had to quit jogging about 6 years ago due the constant pounding effect on my feet. I had surgery on my feet by the Doctor advise me to to jog anymore :-(. I have yet to find an exercise to take place of a nice jog after a stressful day of work. One thing I like best about jogging is that it was simple, because for me it was shirt,shorts,socks,shoes and go, you didn’t have to worry about flat tires, broke chains, or be stranded way out someplace.
    May you continue to be healthy and pursue your dreams.
    Thanks for sharing your experiences and best of luck.
    James

  2. Big Fat Steve says:

    I cannot fathom that you can run marathons. I just wallow in a pig trough and snort through the muck… wanna hear me? YICK SNORT BLECH (imagine human pig sounds). I am a huge battleship of a man, and it’s all coming apart at the seams. I think Great Danes and fat boys like me aren’t meant to live very long, and if I continue down this Charcot path, I may take matters into my own hands. Who knows. I have the courage of a sea slug…. I take that back. At least a sea slug keeps on chug’n. Me, I’ve got a broken right foot and I’ve gained a sh*tload of weight from lying around on my fat pah-toot, and …. as the old song goes… I’m a loser, Baby, so why don’t you kill me.

  3. Lorcan says:

    Hey steve, Im 17 years old with CMT. Some people are to proud to find a fix for CMT so they walk .. As i call it ‘like a spaceman’ , but if you have health insurance you can apply to your nearest disability hospital, who will pay for a fix. Mine have been very generous and got me splints which make me look like i dont even have CMT when im walking. These splints not only allow me to walk, but allow me to do something i have always dreamed of, They allow me to run. It seems like such a basic action nto people without CMT , but it was a dream to me. As i said , go and ask about what u are entitled and see what u get. Hope this helped man 🙂

  4. Marissa says:

    I’m 19; I too have CMT and my real issue is with confidence. I do not like the size of my calfs so now I’m taking matters into my own hands and I’m starting to run. I run on a daily basis at least 2 miles a day; the most I’ve done is 4. In high school I couldn’t run a mile without thinking I was about to die, but now 2, 3 or 4 is relatively easy on me. I probably shouldn’t be running but I have goals to reach.

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