When one of our parent advocates re-posted a picture she found with our slogan, “Hope. It’s In My Genes!” we never imagined it would have the effect that it did.
There have been more than 700 photos posted to Facebook leading up to World Rare Disease Day 2012! Each and every picture touches a string in our hearts and we believe they will in your hearts too.
To see all these precious faces – young and old – and to read the comments posted by mothers, fathers, sisters, brothers, grandparents and friends – is simply amazing.
Rare disease is not so rare especially when you see the community come together like this. As we celebrate the the 5th Annual World Rare Disease Day 2012, we honor each of you in the rare disease community and all the sweet ‘Angels of Hope’ who have been lost to rare and genetic diseases.
Our efforts to spread your hope won’t stop today so please keep posting your Hope photos and stories on Facebook. Share our campaign with your groups, foundations and friends.
Stay tuned for more as we continue forward in 2012.
It’s Rare Disease “Every” Day at Global Genes Project!