Global Genes | R.A.R.E. Project is holding the first annual ‘RARE Tribute to Champions of Hope’ Gala and Rare and Genetic Disease Patient Advocacy Summit September 27-28, 2012, at the Balboa Bay Club & Resort in Newport Beach, CA.  We are now accepting nominations from the rare disease community in the following award categories:

  • RARE Champion of Hope™ Award, Medical Care & Treatment – Recognizing an individual that goes above and beyond in clinical care and treatment for a rare disease patient, family or the community at large.  Someone who engages with a patient/family with a rare disease to optimize care and treatment. This person could be a doctor, nurse or special care provider.
  • RARE Champion of Hope™ Award, Research & Science – Recognizing an individual who is moving the bar in rare disease research and science. Whether from academia, industry, the clinic, or an advocacy group, this person works to advance research for a specific rare disease or is a key agent in the provision of tools and approaches to developing and/or delivering more effective treatments for the rare community.

2 thoughts on “Call for Award Nominations For 2012 RARE Tribute Gala”

  1. Where can I vote for Dr.Karen Herbst? She is the only doctor in the USA to research Dercum’s Disease to such a level.. Is there a dead-line?

    The more the rare diseases get media attention, the more awareness is made to the publicc. The Rarae Disease Day is a wonderful opportunity. The biggest step is educating the doctors, so that we, the patients, are treated with respect and dignity.

  2. Thank you for the feedback Carina! Although our deadline for submissions for the 2012 RARE Tribute Gala Award Nominations was July 14, we appreciate your input and would welcome a submission from you to our patient stories section of the Global Genes Blog: /category/patient_stories/. All our best to you!

    – Global Genes Team

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