Meet James Valvano. James speaks to Global Genes of his impassioned determination to make a difference in the world of Huntington’s Disease. James, along with his second oldest brother, father (who passed from HD and Cancer in 2012), and niece – all share the diagnosis of Huntington’s Disease.
An advocate and supporter of JHD/HD, James is dedicated to bring about awareness with hopes for a cure. With over twenty years of experience in communication and film, James seeks to bring the international JHD/HD community together via a worldwide documentary called- “The Huntington’s Disease Project: Removing the Mask” – Seen by more than 60 countries, you can view the trailer here: www.WeHaveAFace.org
Our aim is to produce the first comprehensive, international documentary, which will incorporate the stories and experiences of our peers in many countries across the globe, as well as including interviews with international HD organizations, HD researchers, and HD medical professionals. A production of this magnitude has never been tried before, and will serve as an educational tool for the entire Huntington’s disease community.
“My desire and dedication to our community is the fuel which wakes each morning.” – James Valvano
WeHaveAFace.org is an independent, educational project comprised of a team of individuals within the Juvenile Huntington’s Disease and Huntington’s Disease (JHD/HD) community. Via the documentary, WeHaveAFace.org will facilitate the first venue by which international community members will be able to tell their stories: uncut – uncensored – untainted. Light must be shed on all aspects of Huntington’s disease and brought to the forefront. It is time to face the challenges within our own community.
“The Huntington’s Disease Project: Removing the Mask” – documentary, is the first of its kind, created solely by individuals within the JHD/HD community, and a legacy for future generations.
How do we bring the HD Community together and support their needs? WeHaveAFace.org in collaboration with Help4HD-International.org provides support through the first radio program for Huntington’s disease every Tuesday: www.BlogTalkRadio.com/Help4HD