My daughter Kendyl Jeanne Rustad was born December 15, 2010 in Minnesota. We brought our baby home and on the third day, she started throwing up bile, not having bowel movements, and wouldn’t wake up. We took her to the hospital right away and she was admitted. While in the hospital, Kendyl’s symptoms became worse. She developed severe jaundice and her abdomen swelled to an unimaginable size.
We were at our local hospital for eight days before they decided they were unable to help our daughter. We were transferred and arrived at Minneapolis Children’s Hospital on Christmas Day. The staff began running tests immediately but Kendyl became increasingly worse. Christmas night she started vomiting feces which gave us a clear indication there was something seriously wrong with her digestive system.
Children’s Minneapolis ran many tests and they all came back “normal.” Kendyl was tested for stomach paralysis, spinal problems, kidney failure, Group B strep, vitamin deficiencies and much more. She was also tested for Hirschsprung’s Disease but that test also came back negative.
Kendyl was not allowed to eat for over a month and instead was kept alive through TPN (Total Parenteral Nutrition). She also had so many IV’s that all of her veins collapsed and are still considered useless today.
After three weeks stay in the hospital, the surgeons on Kendyl’s case decided to do exploratory surgery on her intestinal tract. During a last minute decision while performing an endoscopy, one surgeon decided to do another test for Hirschsprung’s Disease farther up in the intestines. The test came back positive.
We were so relieved to have a positive diagnosis, yet because of the length of time involved, her small bowel almost ruptured and she needed immediate surgery. Kendyl had her affected intestines removed, a stoma put in her abdomen, along with a colostomy bag, and a permanent IV placed.
After her first surgery, her stoma developed necrosis and had to be repaired. Finally, after a long two months, we were allowed to bring Kendyl home. She had her colostomy bag for six months, and had it reversed in June 2011. She still has to do dilations, has many issues with food and going to the bathroom.
Kendyl is now sixteen months old and she is my miracle baby.