The National Institutes of Health has pledged $275 million to fund two multi-year research programs, including studies to discover the causes and cures for rare and undiagnosed diseases, according to an article published by the Burrill Report. The new strategic funding from NIH’s Common Fund includes $145 million in funding over the next seven years for the Undiagnosed Diseases Program (UDP)  to provide a new network of medical research centers focused on the discovery, diagnosis, and care of undiagnosed patients. Of the $275 million, $130 million is being directed to the Extracellular RNA Communication program to understand how RNA outside of a cell is involved in cellular communication.

“This program will spawn new medical discoveries and accelerate clinical investigations that will ultimately improve the lives of thousands of patients living with undiagnosed diseases,” said Francis Collins, Director of NIH. “Establishing a national network of clinical research centers is a critical first step towards addressing the need for more rapid and coordinated approaches to diagnose and manage rare undiagnosed diseases.”

The National Institutes of Health (NIH) is the leading medical research agency in the United States.  As the primary federal agency for medical research, the NIH focuses on research, investigation and treatment for rare diseases, common or otherwise.

For more information, visit

3 thoughts on “National Institutes of Health Marks $145 Million To Help Patients with Undiagnosed Rare Diseases”

  1. Robyn Grimes says:

    I know Kylie and she is such a sweetheart. I really hope that a cure or at least something that can help her can be found.

  2. Barry Brewer says:

    Gene sequencing xs the first step in finding a cure. New gene sequencing machines can do the work at incredible speeds. (Life Technology). The next step is maipulating the gene responsible for a particular disease.
    I tis generally accepted that zinc finger technology is the leading IP to accomplish this.
    The leaders in this catlgory are, Sigma-Aldrich, and Sangamo Biosccenies.
    If these two companies are not at least consulted or involved. Treatments will be slower in coming.
    There are already dozens of Rare monogenic diseases that have been sequenced.
    Now the job is to get the funding to persue the “cures”.
    NIH appears to me to be more intent on finding treatments as opposped to finding “cures”.
    Both Dr Fauci and Dr Collins are geneticists. They ore very familiar with zinc finger technology, now we need to talk them into using the most effective technology available.

  3. Good morning Barry!

    We are intrigued by the level of detail and knowledge on the topic you addressed for gene sequencing and zinc finger technology.
    We would welcome a discussion with you, on whether or not you would be interested in submitting a guest blog related to this subject matter.
    Please contact us at /contact/ with your interest and/or if you have contacts in this area of expertise or in the Texas area that would be willing to submit an article to our website. We tried your e-mail address but the message was returned as un-deliverable. Please contact us so we can discuss your interest! We look forward to hearing from you!

Comments are closed.