Porter is a 4 ½ year old boy born with a rare genetic disease called ARPKD/CHF – Autosomal Recessive Polycystic Kidney Disease/Congenital Hepatic Fibrosis. Although he has a brave heart and positive attitude, his condition will continue to plague him throughout his lifetime.
Because of the generosity of jewelry designer Joan Clare Kubak, Porter and his family received a 7000 Bracelets for Hope™ to help them keep fighting and remain hopeful for a treatment and cure.
Porter is our beckon of light with a strong sense of self at such a young age. We are proud to wear this hope bracelet from jewelry designer Joan Clare Kubak and we love being asked about it. This beautiful bracelet gives me a reason to expand my knowledge and awareness of ARPKD/CHF. Thank you from the bottom of ours heart for this opportunity to be a part of something so incredibly special. – Brandé