Global Genes recently learned that Tatum Lindsay, a 14 month old little girl diagnosed with 16p11.2 Microdeletion Syndrome, received her 7000 Bracelet for Hope right before her G-Tube surgery.
When Tatum was 9 months old, she was diagnosed with this rare chromosome abnormality and is missing a piece of the short arm on Chromosome 16.
Symptoms of 16p11.2 include developmental delay, macrocephaly, dysphagia, and Tatum requires feeding tube (G-Tube). Despite her challenges, Tatum celebrated her first birthday in June of 2012.
She’s such a strong little girl who loves life despite the daily struggles and has taught me to appreciate so much! This bracelet came in the mail the day before her G-Tube placement surgery, at an absolutely perfect time to have a piece of hope in my hand. A special thanks to those who donate bracelets for this project… it is an amazing feeling to know that someone, somewhere cares about rare kids and families! – Samantha Lindsay
Thank you to our contributing jewelry designers for making this program possible for Tatum and all the many other families affected by rare disease or genetic conditions.
To learn more about this rare condition go to: 16p11.2 Microdeletion Syndrome .