Organization: The Huntington’s Post

The Huntington’s Post is the first online newspaper FOR the Huntington’s community ABOUT the Huntington’s community and BY the Huntington’s community. Visit often, as we are continually updating articles for the latest news about events, research and clinical trials. All of the writers at The Huntington’s Post are personally affected by HD.

Contributing Writer, Katie Jackson, HD advocate extraordinaire has been living with HD for quite some time; with an HD husband, children at risk and many friends, she is fighting for their lives by sleuthing out hope for HD to write about.

Find THP column ‘Dear Gaby’ for questions and answers about issues relating to the struggle with managing HD. Gaby (Gabrielle Hamilton, LCSW) has been living with HD for many years and helping the HD community is her passion.

Robert Cuomo, Investigative Reporter, will bring us the TRUTH about controversial and confusing information navigating us through all the fog within the Huntington’s world.

What is Huntington’s disease?

Huntington’s disease is a hereditary, degenerative, and terminal brain disease caused by a genetic defect on chromosome 4. Huntington’s disease (HD) or Juvenile Huntington’s disease (JHD) is an autosomal dominant disease. HD slowly diminishes the affected individual’s ability to walk, talk, and reason. In time, the person with HD relies completely upon others for their personal care. HD affects the lives of entire families – emotionally, psychologically, socially, and economically and knows no ethnic and racial boundaries. Every child of a person with Huntington’s disease has a 50/50 chance of inheriting the fatal gene. When the onset of the disease happens before the age of twenty, the disease is called Juvenile Huntington’s disease. JHD experiences the same challenges but may experience many additional traumatic symptoms: epileptic seizures, adverse behaviors, and mental dysfunctions, decline in scholastics…the list goes on.

These JHD Warriors need much more support and resources. Currently, not many of these vital resources are available, which makes the battle so much more difficult!

Click HERE for more information about Huntington’s.

1 thought on “TheHuntingtonsPost.org – The First Newspaper for Huntington’s Disease”

  1. Ronald Huegel says:

    I have very exciting news! I recently found a study posted online by John Hopkins that associated Huntington’s Disease with a Cysteine deficiency. The study is easy to find : just google “cysteine deficiency causes Huntington’s disease.” The mouse trials looked really good so I decided to put it straight into human trials with me as the initial volunteer. About 6 days ago I purchased a bottle of N-Acetyl-Cysteine and some whey protein. I took 600mg N-Acetyl-Cysteine in the evening and woke up the next felling much better, many symptoms were gone, most importantly I felt re-connected to reality. I have been taking about 1800mg N-Acetyl-Cysteine and drinking Whey Protein shakes morning and night. All symptoms are currently gone…completely, I feel reconnected, communication is fine, walking feels better, balance is fine, I still get muscle pings sometimes a few hours after taking the supplement and I think this due to “crashing” affect so I am switching to a time release version of N-Acetyl-Cysteine.
    Here is what I currently think: There are two sets of symptoms associated with Huntington’s Disease. The first is from the Cysteine deficiency itself, which is why many symptoms went away so quickly. The second is from brain cell loss which is why I continue to feel better and better every day. If any of this interests you feel free to contact me by phone or e-mail and I am happy to talk to you about this!

Comments are closed.

X