Judson Levasheff, born Christmas Eve 2004, was a vibrant, bright, and articulate little boy when his body suddenly and rapidly began to deteriorate. Over a period of just five months, Judson became completely paralyzed, blind, and mute. Judson died November 7, 2007 from late-onset Krabbe Disease.
Krabbe disease (also known as globoid cell leukodystrophy or galactosylceramide lipidosis) is a rare and fatal degenerative disorder that affects the myelin sheath of the nervous system. It is a form of sphingolipidosis, as it involves dysfunctional metabolism of sphingolipids.
Judson’s Legacy has been established in his honor to share the hope of heaven while giving Krabbe kids a chance at life on earth. Judson’s Legacy is committed to funding research for Krabbe and other leukodystrophy diseases, particularly by supporting the Hunter James Kelly Research Institute (HJKRI), a collaboration between the University of Buffalo and Hunter’s Hope Foundation.