My name is Aleena and at the age of 16 (I am 20 now) I was diagnosed with Behcet’s Disease, a rare autoimmune disease. Behçet’s disease (BEH-chets), sometimes called Behçet’s syndrome, Morbus Behçet, or Silk Road disease causes chronic inflammation in blood vessels throughout your body. The signs and symptoms of Behcet’s disease can include mouth sores, eye inflammation, and skin rashes and lesions.
These past few years things have been so tough for me that the only thing solid that I could hold on to was my faith and hope! Having a rare disease is horrible, and there is little awareness or knowledge. Some doctors don’t even know what it is.
This is why I appreciate what the Global Genes Project is doing by sharing stories from people with rare diseases like mine — they are helping us bring awareness to diseases that no one has heard of and that gives me sooooo much hope.
The suffering and the pain and not having answers is something I fight everyday. People ask me, are you really sick? Yes! My illness is on the inside of my body and just because it is unseen doesn’t mean it’s not there. I have such faith in God and my Hope in Him that I will be OK.
Once you choose HOPE anything is possible! Because I am a fighter and I have hope, I WILL BEAT BEHCET’S.