We need your help!
Does your doctor get thumbs up or thumbs down?
Was your or your child’s rare disease diagnosis delayed due to lack of knowledge by doctors?
The Global Genes|RARE Project exists to raise rare disease awareness, unify, equip and empower a vibrant rare disease community. Our mission to fund innovations to support “in-their-lifetime” rare disease research is also a critical component to why we exist.
By providing us with your experiences as a patient with a rare disease, you can help us meet our objectives!
Please take 10 minutes to tell us about your experiences with getting a rare and genetic disease diagnosis – your feedback on the process with your doctor could help lots of people with rare diseases!
Each participant who completes the survey will be entered into a drawing to win a $200 VISA gift card!
Click this link and take the survey!