Advocates Luncheon
& Conference Call

Wednesday, September 12, 2012
1:00 pm Eastern

750 9th Street, NW, Washington, DC
6th floor Office of Akerman Senterfitt – Washington Conference Room

 

Agenda Includes:

  • National Pediatric Research Consortia Act
  • Compassionate Freedom Choice Act of 2012
  • Sequestration – Potential Budget Cuts
  • The Patient Choice Act of 2012
  • Your Candidates, Your Health by Research America
  • Newborn Screening Saves Lives Act Reauthorization
  • The agenda is open; please submit agenda items to patientadvocate@kakkis.org

You can also participate via conference call; please RSVP to receive the call in number, by following the link below to indicate whether or not you would like to attend.

RDLA Luncheon and Conference Call Attendance

 

Upcoming Rare Disease Advocacy Events:

Sept. 12:    SHIRE/Politico Breakfast Briefing on FDASIA
and the Future of FDA, Washington DC
Sept. 28:   Global Genes Patient Advocacy Summit, Web-casted
Oct. 19:     Global Healthy Living Foundation & Eli Lilly present
the 2nd eAdvocacy Summit, Washington DC
Oct. 22-24: US Conference on Rare Diseases and Orphan Products,
Washington DC
Oct. 30-31: BIO Patient and Health Advocacy Summit, Washington DC
Nov. 14:   RDLA’s RareVoice Awards Gala, Washington, DC

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