Nominations are Open: HERE

Deadline for Nomination Submission is Friday, Sept. 21st 5pm PDT

On November 14, 2012, RDLA will host its inaugural RareVoice Awards Gala to honor and thank Members of Congress, Congressional Staff and Patient Advocates for their advocacy to ensure The Food and Drug Administration Safety and Innovation Act (FDASIA), S. 3187 included provisions that spur the development of life saving treatments for rare disease patients.

FDASIA contained many rare disease provisions that were championed by different Members of Congress, advocates and organizations.  In order to ensure we recognize all those who made a significant contribution, our nomination process is open to the Rare Disease Community.  Click here to read about the different rare disease provisions in FDASIA.

There are two award categories:

• Congressional Staff/Member of Congress:  Recognizing a Congressional Staffer and the Member of Congress for taking a leadership role to ensure a rare disease provision was included into FDASIA.  (Awards will be given both to the Member and to the Congressional staffer; just one nomination per office is needed.)

• Patient Advocate:  Recognizing a patient, parent or volunteer who took a leadership role in successfully advocating for rare disease legislation that was included in FDASIA.

 

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