Living with a disorder has never been easy, but turning something around for the better is a great goal. My disorder is Trimethylaminuria (TMAU).
TMAU, also known as fish odour syndrome or fish malodour syndrome, is a rare metabolic disorder, where the body loses the ability to properly breakdown the timethylamine (TMA) found in certain foods into timethylamine oxide (TMAO). Trimethylamine then builds up and is released in the person’s sweat, urine and breath, giving off a strong fishy odor.
In my experience, it brings bout social avoidance, mainly because people feel as though you do not practice good hygiene. It also creates financial problems, because companies will not hire you, as they base their hiring on perception. Once you have finally obtained employment, you are faced with harrassment, such as I was, having people spray you with lysol or perfume, being removed from our bus system to walk across town, or not being served at restaurants.
I have obtained an MP3 player to listen to my music, use supplements, and have changed my diet . I have also started a campaign for public awareness of my disorder, including information on assistance. This disorder will not defeat me; I will win!