NYC Fashion Photographer Focuses on Rare Disease in New Grand Central Show
Hunter syndrome, or mucopolysaccharidosis II (MPS II), is a serious genetic disorder that primarily affects males. It interferes with the body’s ability to break down and recycle specific mucopolysaccharides (mew-ko-pol-ee-sak-ah-rides), also known as glycosaminoglycans (gli-ko-sah-mee-no-gli-cans) or GAGs. Hunter syndrome is one of several related lysosomal storage diseases.
Hunter in Focus, a Positive Exposure™ Project is the first global photography exhibit to raise awareness for Hunter syndrome, a rare and progressive genetic disorder. This exhibit, to be launched on October 26, 2012, at Grand Central Terminal in New York City, shares the stories of nine remarkable individuals and their personal journey with the disorder.
In partnership with Shire Human Genetic Therapies (HGT), Rick Guidotti, founder of Positive Exposure™, traveled around the world photographing people with Hunter syndrome with the hope of increasing awareness for the disorder. Because the signs and symptoms of Hunter syndrome are common to many childhood ailments, it is often difficult to diagnose.