It happens all the time. The phone rings, the e-mails pour in, and the flurry of comments rush in on personal posts, individuals eager to find that one person or group for which they can discuss their fears, concerns, and sometimes the occasional advancing milestone.
People living with a rare disease or in need of a diagnosis all share similar feelings. For many individuals, it’s the need to not feel alone in their diagnosis, or wanting to make a difference for others with similar circumstances; and, for some it is the ability to gather information so their own experience of living with rare disease can be managed with greater care.
R.A.R.E. Project offers an opportunity to the rare disease community through their RARE MeetUps™ program to share ideas, learn, and connect with others (diagnosed or otherwise) who are also experiencing the world of rare and genetic diseases.
Take a moment to visit our RARE MeetUps™ Page to learn about how you can get engaged with other people who are just like you.
- Washington D.C
Tuesday, November 13th at 5:00 pm
- Ventura, California
Wednesday, November 14th at 6:30 pm
- Kalamazoo, Michigan
Saturday, November 17th at 2:00pm
- Escondido, California
Wednesday, November 28th at 5:30pm
- St. Anthony, Minnesota
Saturday, December 1st at 10:00 am