Back in December of 2011, I started to develop headaches and nausea. My eye sight was getting poor, and my balance was bad. I went to my doctor, who diagonosed me with Bell’s palsy. As time went on, my face developed a droop on the left side. and I could not stand up.
My mom would come to visit me, but I spent most of my time sleeping. I returned a couple more times to the ER for treatment, and they released me with more pills for nausea, but that just never seemed to help. In March of 2012, I went to visit my mom. She had to pick me up since by now my vision was impaired so bad that the only way I could pick up something was by the colors that I could see.
It was Easter, and I took a trip to the hospital. They diagnosed me after a CT scan, saying I had what they thought was a brain tumor. I was rushed off to a hospital farther away, where after many tests and many uncomfortable moments, I was diagnosed with possible Behcet’s disease. But the treatment was started before they could fully say that is what I had. I was there for 14 days. I then returned again nine days later, when they then finished what they started, and I was told I had Behcet’s syndrome. My left side had to be worked with, so I could walk again. My brain stem had a lesion called a ganglion. I have no memory of what happened to me. My gait was off when I returned to the hospital. My head was shifted to the right with a right-sided gaze.
I am now on Prednisone, Azathioprine and pills for the infection. I am getting better as each day goes by, but it has been a long and scary road thus far. I feared death. It took me a long time to get over this thought. But with the loving support of my mom and family, I have begun my healing process. I just hope there is a cure for this soon. So I can lead a better life and be free of living with this disease called Behcet’s.