Today, “The Balancing Act” on Lifetime Television aired their first segment Behind the Mystery of: Rare and Genetic Diseases, a series produced with the intention of introducing and uniting patient, physician, and scientist with research, education and opportunity to revolutionize the way our health care system works for the Rare and Genetic Minority.
Today’s episode included internationally renowned physician, Dr.Olaf Bodamer, and mother, Mary Pruitt of LAL Solace to help build awareness for the rare disease, Lysosomal Acid Lipase Deficiency (LAL).
By partnering with The Global Genes Project, The Balancing Act is able to provide available support to patients diagnosed with rare and genetic diseases, and to give hope with news of clinical trials and new treatments. Together, we can begin a new wave of advocacy and support for the rare community.
The Balancing Act supports and celebrates patient advocacy groups and industry leaders, who inspire connect and guide patients as they move forward through their journey towards treatments and a cure.