I have done this before: started a blog, thinking I would share my thoughts with the world but realizing weeks later that I don’t have a theme to organize my thoughts around. Now I have found one. Something I am passionate about, something I can push toward and carry on with. Some people choose love to occupy their writing. That is not my highest writing priority (though it should be known that I am madly in love with a wonderful man). Vengeance and sadness are too heavy for the internet; I like my computer contents to be light and fluffy. So here it is, the grand idea.

I am going to run a half marathon, 13.1 miles. To those who run on a regular basis, this is small potatoes. To those who compete in marathons and triathlons (you know who you are), this is an easy jog. But to me, this run represents something huge. A feat of epic proportions, if you will. I started training last week as the run is on March 16th in Washington, D.C. I am terrified for the roadblocks I will encounter, and I am more determined than ever to complete this run. Why would something as simple as a half marathon be this difficult? Because it is more than that: I am one of the “glass” people with Osteogenesis Imperfecta (OI). This run is my way of telling the universe that I am more than my genetic makeup. I have an unbreakable spirit. And I am running for everyone who lives with the same disease. I am one of the lucky ones, and I am running for those who can not run for themselves.

So, here is the plan. I run in March. Until that point, I will record my process. How I train, how I am feeling and any injuries I may acquire. I would love support from my friends, as well as those in my OI community. I am also planning on wearing an Unbreakable Spirit shirt when I run the race, and if anyone wants their name on that shirt, I would love to run for them.

2 thoughts on “Joanna May Have Osteogenesis Imperfecta, But She Runs with Unbreakable Spirit”

  1. Jo says:

    Awesome! Good luck on the run — You’ll do great!!
    I hope you will join us on May 6th for Wishbone Day by wearing yellow to raise awareness of OI worldwide. wishboneday.com

    Keep up the great work!

  2. sheila crook says:

    Jo, good for you, I hope your training is going well. I also have OI and have ran many half marathons and one full marathon. I am side lined right now with a heel stress fracture but just wanted to connect and say hello and good for you.

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