On November 14-17, Women in Government held its Third Annual Healthcare Summit in Washington, D.C. This three-day event covered a wide range of topics, including women’s health, diabetes, Alzheimer’s disease, public health partnerships, chronic disease prevention and management and recent innovations in healthcare.

There were also informative panels that featured expert speakers, who discussed many topics that emphasized how state policymakers can improve the lives of their constituents. In total, the event boasted 45 state legislators. Global Genes|R.A.R.E. Project was also in attendance at the event and felt privileged to represent the rare disease community, discuss its needs, methods for raising rare disease awareness and how to get involved.

We had the honor of speaking on behalf of the rare disease community with our friend and partner, Dr. David Eckstein of the National Institutes of Health,” said Nicole Boice, Founder of Global Genes | R.A.R.E. Project. “We talked about our efforts to build community and an actively engaged constituency to help the legislators do their job by helping support us!

At the end of the event, many legislators were committed to supporting the rare disease community on World Rare Disease Day (WRDD) in February 2013. One of these very special people is Congresswoman Phyllis Henderson of South Carolina, who is already starting to plan a big WRDD event in her hometown with the help of some of her local friends!

 

 

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