Our very own Nicole Boice, founder of the Global Genes | RARE Project, joined The Balancing Act on Lifetime Television to talk about how millions of Americans—one in ten—fall through the cracks of medical treatment because there is so little awareness or research funding the treatment of their conditions. There are seven thousand diseases with no treatment or cures, and awareness is needed to build a voice for those suffering from rare diseases and disorders with little to no support.
Behind the Mystery of: Rare and Genetic Diseases is a series produced with the intention of introducing and uniting patient, physician, and scientist with research, education and opportunity to revolutionize the way our health care system works for the Rare and Genetic Minority.
By partnering with The Global Genes Project, The Balancing Act is able to provide available support to patients diagnosed with rare and genetic diseases, and to give hope with news of clinical trials and new treatments. Together, we can begin a new wave of advocacy and support for the rare community.
The Balancing Act supports and celebrates patient advocacy groups and industry leaders, who inspire connect and guide patients as they move forward through their journey towards treatments and a cure.