Survey Graphic

Global Genes | RARE Project  is requesting your participation in an important  survey so we can better understand the RARE Patient Advocacy community.

Our RARE Patient Advocacy Community is made up of thousands of organizations representing over 7,000 RARE diseases.  We hope the results of this survey will help us to better represent and support the RARE community.

Click here to start the survey
… if you use Internet Explorer v9 (IE9) please make sure “compatibility mode” is enabled!

The survey should only take 10 minutes of your time to complete and your identity will not be made public.

The survey is hosted on a secure site by a trusted 3rd party.  As part of their security measures they will ask you to create an account so you can securely log in.  Your responses will remain completely confidential – they will be combined with responses from others who complete this survey and the results will be reported only in aggregate form.