2013 “Tribute To Champions of Hope” Gala

2013 RARE Tribute to Champions of  Hope Gala

The 2nd Annual Tribute to Champions of Hope Gala
Saturday, September 21, 2013
5:30 pm (Dinner begins at 6:45 pm)
Blue-Tie Optional
The Balboa Bay Club & Resort
Newport Beach, California

An unforgettable evening you won’t want to miss!

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Evening Highlights and Honors

The Henri Termeer Lifetime Achievement Award

Honoring Dr. Stephen Groft, Director – National Institutes of Health, Office of Rare Diseases Research

RARE Champion Award – Advocacy
Rick Guidotti, Founder – Positive Exposure

RARE Champion Award – Patient Driven Science
Josh Sommer, Executive Director – Chordoma Foundation

RARE Champion Award – Advocacy
Dylan Siegel / Jonah Pournazarian, “Chocolate Bar Book” Boys

More Awards, Surprise Special Guests and Entertainment Announced Soon!

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Hotel and Travel Information


We would like to thank our generous sponsors and supporters

Sponsorships are still available.