Global Genes | RARE Project will be hosting a series of webinars in 2013 geared towards educating and empowering our RARE community.

Webinar #1:  Newborn Screening
Register today!

Many more diseases can be detected at birth than are currently part of the newborn screening panels in each state. Join us for a vibrant discussion and to learn more about why the states have different screening panels, how a particular screen can become part of your state’s NBS panel, how the federal SACHDNC panel influences state screening, and the importance of renewing the Newborn Screening Saves Lives Act of 2007.

Date:  January 24, 2013
Time:  11:00 am Pacific Time

Panelists have expertise in both state and federal newborn screen laws, will discuss the process and challenges connected to expanding newborn screening and review the re-authorization of the Newborn Screen Act coming before Congress in March.

Bill Morris, Grey’s Gift
Jim Bialick, Newborn Coalition
Dr. Fred Lorey, Chief Genetic Disease Screening Program (California Department of Public Health)

Sponsored by:  Shire

Register today!