I have been experiencing unusual symptoms since back in the 1980s. I went to a clinic for arthritis back then, and I spent over eight hours there with them, trying to explain some of my symptoms, particularly my Raynaud’s symptoms. The conclusion was that I had Raynaud’s phenomenon, and there was little I could do for it.
Years rolled by, and my achy hands started to look more like ten sausages rather than fingers. I went to different doctors and then one day, in 2008, a doctor suspected that I had Scleroderma. I wait for the day when we can write Scleroderma and not have spell check underline it.
I have felt grateful and blessed for the wonderful people and hope in my life, despite living with Scleroderma and its complications. I was connected with a group of people on Facebook, The Scleroderma Angel Foundation (this nonprofit was created to educate and promote public Scleroderma awareness worldwide through media, including social media), from all over the world that have Scleroderma too. There is a sense of comfort in knowing that there are other people that know what I am going through. I wish with all my heart that all of them could be cured and no longer suffer from this dreaded disease.
I have always felt that it could be so much worse than it is, and I am so appreciative of the love and support that I have. I am so hopeful that one day a cure will be found. There are so many people suffering from this ugly disease. I feel that I am so lucky because it could be so much worse.