The Rare Disease Foundation

Event Date:  February 28, 2013
Organization:  The Rare Disease Foundation
Location:  BC Women & Children’s Hospital – Chan Education Centre

Celebrate Rare Disease Day with the Rare Disease Foundation. We’re bringing together our researchers, volunteers and community to celebrate some of our successes. Join us for the evening and find out where our research dollars are spent and how our families connect and draw support for one another.

Please RSVP to let us know you’re coming. And watch this space to find out more details about guest speakers!

If you’re not in the area, you can always catch our guest speakers for the evening via webcast.

2 thoughts on “International Rare Disease Day with the Rare Disease Foundation”

  1. Buddy says:

    Good to see a tanelt at work. I can’t match that.

  2. sheryl faro says:

    I have a rare muscle disease and its started 6 years ago … when I got the pain they didnt give me pain meds so i layed there in pain making my muscles worse and the pain now i can feel the muscles in my chest so tight arund my ribs like they are all dry and when i breathe i can feel them moving ripping in me its so painful and no hopistal will help me or doctor really are listening to me.. for years I am so scard I wont be able to move and lay here knowing the rest of me will given out..and i will die

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