Date of Event: February 28, 7:30pm – 9:00 pm
Organization: Whitehead Institute
Location: Whitehead Institute, Nine Cambridge Center, Cambridge, MA 02142
Whitehead Institute hosts a special event on Thursday, February 28th from 7:30-9:00 pm, featuring Whitehead’s latest rare disease research and the opportunity to hear from rare disease advocacy organizations from across New England.
In recognition of International Rare Disease Day, we are delighted to host the 2nd annual Rare Disease Forum at Whitehead Institute. Join us for this special event on Thursday, February 28th from 7:30-9:00 pm, to learn about Whitehead’s latest rare disease research and to hear from rare disease advocacy organizations from across New England.
At this year’s Forum, Whitehead scientists Hazel Sive, David Pincus and Sebastian Lourido will each present their research and discuss the vital role that basic biological research plays in developing treatments for rare and devastating maladies.
Following the scientific presentations, geared towards a lay audience, Whitehead Institute’s partner organizations—four non-profit advocacy groups from across New England—will each lead a breakout session to discuss the various challenges and opportunities they face in the advocacy and promotion of rare disease research.
This is a Private Event. RSVP Required.