Date of Event: February 28, 6:00pm – 10:00 pm
Organization: CADASIL Together We Have Hope
Location: Austin Texas
CTWHH will raise awareness for rare diseases (including CADASIL) by attending the Texas State Capitol “Rare Disease Day 2013 Rally” on February 28, 2013 from 8:30 a.m. to 10:30 a.m. CADASIL Together We Have Hope was honored to be granted a special time to speak at the rally, joining various doctors, nurses, researchers, dignitaries, musicians, special guests, as well as patients & families with inspiring stories.
CADASIL Together We Have Hope (CTWHH) was established on May 10, 2005 as a non-profit organization.
We are devoted to promoting awareness, education, support, and research for CADASIL patients, families, friends, and health care providers. We are dedicated to enhancing the established communication network among families as well as identifying sources of medical care and social services. We foster advocacy and open communication among all stakeholders as we work collegially to find a treatment or cure for CADASIL
This event is open to the public.