The Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) is the only national venue where parents can share their stories and thoughts on newborn screening in public deliberations. If their funding is not extended, this important committee may be forced to close its doors (if the newborn screening reauthorization doesn’t occur).
Any gap in the Committee’s activities may lead to babies’ lives in this country being needlessly lost. So we strongly urge you to take a minute to sign this petition to help ensure this vital Committee continues its work without interruption. The petition closes this weekend.
Babies do not have a voice, and our community needs to be their voice! Thank you to everyone who has already signed!