It’s not like your whole life isn’t already on Facebook. Why not use the social network to reach out to the rest of the rare community. You can start my liking our Facebook pagewhere you can start discussions with other rare disease patients from all over the world.

Support groups for diseases like POTS, Ehlers Danlos, MCAD, PIDD/CVID, Wegeners, Addisons, Achlasia, and Steven’s Johnson Syndrome.

Here you can connect, ask questions, get referrals for local doctors, and learn about daily life with your disease.

In the world of rare, your strongest resource is your fellow patient. Don’t be afraid to reach out to others!

1 thought on “Patient Tools: Facebook Support Groups”

  1. Autoimmune Awareness & Education Meeting in Michigan. Saturday, August 9, 11:00am – 1:00pm. It will be held at the Henry Ford Macomb Hospital located at 16151 19 Mile Road – Medical Pavilion, 4th Floor – Conference Room 3. (The hospital is on 19 Mile Rd between Garfield and Hayes.) Dr Jerri Lynn will speak about “Healthy Living with Autoimmune Psoriasis and Psoriatic Arthritis”. This event is free and open to the public. Spread the word! See you there.
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