It’s not like your whole life isn’t already on Facebook. Why not use the social network to reach out to the rest of the rare community. You can start my liking our Facebook pagewhere you can start discussions with other rare disease patients from all over the world.
Here you can connect, ask questions, get referrals for local doctors, and learn about daily life with your disease.
In the world of rare, your strongest resource is your fellow patient. Don’t be afraid to reach out to others!