Rare Disease Legislative Advocates is pleased to invite you to the 2nd Annual Rare Voice Awards Gala

A celebration to honor advocates who give rare disease patients a voice on Capitol Hill

Thursday, October 10, 2013
6:00 pm Cocktail Reception – 8:00 pm Awards Ceremony – 9:00 pm After-Party
Arena Stage, 1101 Sixth Street, SW, Washington, DC

Presented by Shire

The RareVoice Awards Gala is a free and widely attended public event  

You must RSVP at RareVoiceAwards.org to attend

We are very pleased to recognize The Honorable David McKinley & The Honorable Michael Burgess with Congressional Leadership Awards

Congratulations to the 2013 RareVoice Awards Nominees:
Congressional Staff: 

  • Nicole Cohen, Senior Legislative Assistant, Office of Rep. Crowley (D-NY)
  • Helen Dwight, Senior Legislative Assistant, Office of Rep. Lance (R-NJ)
  • Art Estopinan, Parent Advocate, Chief of Staff, Office of Rep. Ros-Lehtinen (R-FL)

Government Agency: 

  • Mike Astrue, Former Commissioner, Social Security Administration
  • David Eckstein Ph.D., Senior Health Scientist Administrator, National Institutes of Health
  • Janet Woodcock M.D., CDER Director, Food & Drug Administration

Patient Advocates: 

  • Stephanie Bozarth, National MPS Society
  • Patricia Furlong, Parent Project Muscular Dystrophy
  • Tiffany House J.D., Acid Maltase Deficiency Association
  • Kimberly & Michael Illions, Pediatric Hydrocephalus Foundation
  • Christine McSherry, Jett Foundation/Duchenne Alliance
  • Joseph Muenzer M.D., University of North Carolina at Chapel Hill
  • Jill Wood, Jonah’s Just Begun Foundation

More information at www.RareVoiceAwards.org

Please note: The Government may have temporarily shut down, but as you know, disease does not stop progressing to wait for treatment.  Rare disease patients, more than ever, need to have a stronger voice on Capitol Hill.  The RareVoice Awards Gala provides advocates an opportunity to strengthen relationships with Members of Congress, Congressional and Government Agency Staff.  This year’s celebration will be a well-deserved “thank you” party for Congressional Staff who have been working late into the night and through the weekends these past weeks to continue to support our efforts and serve constituents despite the looming crisis.  We hope you will join us for this important event to celebrate those who give rare disease patients a voice on Capitol Hill.

Thank you to our sponsors: