I am 58 years old and have lived a life rife with illness.

Some of these illnesses include Lupus, Rheumatoid Arthritis, Mixed Connective Tissue Disease, Hypothyroidism, Hypoglycemia, GERD, Raynaud’s Syndrome, Asthma, Chronic Bronchitis, Hypertension, IBS, Constant UTI’s and Endometriosis.

To ease some of my symptoms, my doctors and I decided on my having a total hysterectomy at age 36. Unfortunately, because of this, I was never able to have children.

Doctors have now performed tests that concluded I have a disease called Primary Immune Deficiency Disease, or PIDD for short. This, they speculate, is why I have all the autoimmune diseases that I have.

Growing up, I was raised by a single mother in rural North Carolina. We had no money for insurance or doctors– and so illnesses were often swept under the rug. When I was ten years old, we moved to California. A few short years later, I had severe Mono and strep throat.

My illnesses progressed over time and as a result I am now on an oxygen tank twenty-four hours a day. Tests have estimated that my heart is only functioning at 35 percent.

I had my first IVIG (Intravenous Immunoglobulin) treatment this Saturday and it has been a rough four days of adjustment. I get Rituxan infusions every three to four months for the Lupus and RA. I have high hopes for relief from the IVIG.

1 thought on “It Took Them Long Enough!”

  1. Robyn Bray says:

    Have you been tested for Celiac Disease. It could be the cauae of the other issues. It was for me. Found out at 50, after a lifetime of progressing illness. Ended up with advanced autoimmune cirrohsis of the liver.

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