Organization: Moebius Syndrome Foundation
Moebius syndrome is a craniofacial/neurological disorder that manifests itself primarily in facial paralysis. Individuals with Moebius syndrome cannot smile or frown and do not have lateral eye movements. Many individuals with Moebius syndrome also have skeletal involvement with limb abnormalities. People with Moebius syndrome can have respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders, weak upper body strength and autism spectrum disorders.
The Moebius Syndrome Foundation is a 501(c)(3) nonprofit organization. The mission of the Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
The conference will offer an incredible opportunity for people with Moebius syndrome to meet others with the same condition, to connect with old friends and make new, lifelong friends. There will be presentations, workshops and support sessions as well as consult and research opportunities. Special sessions will take place for teens/young adults and children.
For more information on the 2014 Moebius Syndrome Foundation Conference: