On behalf of the Global Genes | RARE Project staff, we would like to thank all of those who attended our Understanding Rare Registries Webinar Series. The presentation slides as well as the webinar recordings for Part 1 & Part 2 are available on the Global Genes website or by clicking here.

Global Genes is grateful to have had so many amazing speakers participate in this important series, and we hope you found the content both helpful and informative. In an effort to improve our RARE webinar series, we are asking everyone who registered or attended to take a couple of minutes to answer a few questions regarding their experience by clicking here.Thank you again for your interest in our webinar series, and I hope to see you at our next webinar, Caregiver Support and Resource, which is just a couple of weeks away. Register today by clicking here.