Hello, my name is Vu. I’m from Vietnam. I’m 23 years old. I’ve suffered from Parry Romberg Syndrome for three years. To me, this has been a long time with severe pain in my left neck, cheek and head. Have you ever heard about PRS? It’s a rare disease which causes facial asymmetry. There are an estimated 500 sufferers on over the world.

Three years ago, I felt something moving in my left cheek.The indentation appeared and got bigger which made my face asymmetrical. I couldn’t do anything but watch it getting worse. It was so frustrating to have that feeling. I went to the hospital, and the doctor said that I have trigeminal neuralgia. After a year of treatment, nothing changed. I researched the internet, and found the term “Parry Romberg” which matched every symptom I had. I tried oriental medicine and acupuncture, but it didn’t work well for me. In Vietnam, we don’t have any doctors who know a lot about PRS like Dr. Siebert.

Luckily, my friends didn’t notice the asymmetry, they just saw my face was getting thinner. I felt sad whenever they asked me “Why do you look so thin?” It’s more pronounced in picture, so I avoided taking pictures as much as I could. I lived like a dead man. I didn’t want to go out. I denied every party invitation. I turned from an extroverted person into an introverted person in a short time.

Some nights, I woke up with the pain. I almost gave up. I asked God, “Why does this happen to me? Have I done something wrong?” But I had no answers. I felt so angry. I’m angry about myself and the world. I thought that it was so unfair. I continued to live like that for two years– until I read some amazing books about belief and spirituality.

I started to believe in miracles and spirituality. I started to understand that things happen not by accident. If God wanted it here, there must have been a reason. When I started to believe, that is when my life started to change completely. I had gotten out of the darkness. Now I’m more happy and peaceful. I’m thankful for this new path. I decided to join a meditation society in Ho Chi Minh city, Viet Nam. It helps me a lot. The pain, the facial asymmetry is still there, but it’s getting better.

If you are suffering from PRS or other diseases, don’t don’t just give up– live your life. Because we are human and we have the right to live with health and happiness, and there is always a miracle in life.

5 thoughts on “A Spiritual Resolution for Vietnam Patient with Parry Romberg”

  1. Robert Dodge says:

    Thank you Vu for your uplifting message. As I worked on my book, Vietnam 40 Years Later, I also was touched by the struggle of young people affected by Agent Orange. Their happiness and positive outlook in the face of such enormous handicaps certainly gave me hope.

    I detail the lives of today’s Vietnam in my upcoming book, Vietnam 40 Years Later, to be published in March 2014. The book will include more than 100 photos showing today’s Vietnam as we approach the 40th anniversary of the end of the war.

    You can learn more about the book here: http://www.Vietnam40YearsLater.com

    And you can join the book’s Facebook fan page here: https://on.fb.me/175QsXp

    All the best!

  2. Diantari says:

    I can’t see the asymmetry in your photo – is it very mild, or what? Would like to hear more detailed info as I hv a thinning face and neurological symptoms as well.

  3. Vu says:

    Actually it’s getting better. Please connect me on facebook and join our group. We can share our journey.


  4. lucy says:

    Vu. Thanks for your story. I am 45 and have been diagnosef with en coup de sabre, morphea and possibly parrys.
    I have beeb butter, sad, depressed, terrified and hopeless. Now I have some hope and I feel less alone. Thanks.

  5. Sara Santos says:

    I feel like I am experiencing the exact same thing, left side of face, cheek bone feels much smaller on my left side, also my jaw bone is much smaller on left side. My ear hurts a lot also. I live in Heber Utah, I think the doctors here don’t know how to recognize this asymmetrical problem I am having. I wish you the best. Sara Santos

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