The Robert Tweed Foundation
Location of Event
American Legion Post 28 on Route 24, Oak Orchard, Delaware
Rare Disease | Genetic Condition
Aggressive Giant Cell Granuloma
Date of Event
Name of Event
Bringin’ Back The Smile Motorcycle Ride
After noticing changes in the asymmetry of 8 yr old Rylie’s face her family took her to AI Dupont where it was discovered that she had a mass consuming the maxilla and much of the bones on the left side of her face. After weeks of extensive testing it was finally realized to be an extremely rare Aggressive Giant Cell Granuloma Tumor. She was the first to be treated at AI Dupont for this type of Tumor.This is an aggressive disfiguring and damaging tumor that must be removed or it will continue to grow and consume her bones. Rylie underwent a 6hr surgery to remove the tumor from her palate, above her teeth, nasal orbit, sinus, cheek and under her eye orbit. Her chances of reoccurrence or very high and will undergo regular testing. Rylie is a strong little girl but she still needs your help to fight this unfortunate ailment. Please join us by giving generously a nd help give this beautiful girl her smile back!
Motorcycle Registration begins 10:30am at 93.5 The Beach Rt 113 Georgetown, Delaware. Donation of $20 per person($30 per couple). Kick stands up at noon. Ride starts in Georgetown (escorted by State Police) & ends at American Legion Post 28 in Oak Orchard, De on Rt 24. Food, Drinks & Beer (with ID) for small donation, raffles, door prizes, live music, and DJ from 1pm on….Sponsored by The Robert Tweed Foundation.
Anticipated Number of Attendees
Is Event Open to the Public?