A new survey has been circulating that has the potential to provide information which may help protect children’s rights and eliminate discrimination against children with rare or undiagnosed diseases.

With recent news stories such as the case of Justina Pelletier of Boston Children’s Hospital, some feel a study on this particular topic can’t come soon enough.

Interested participants can visit https://www.surveymonkey.com/s/KCC7WGT to take the 5-10 minute survey for research purposes.

The survey was created by the newly formed Pediatric Justice Association.

1 thought on “Protecting Children with Rare & Undiagnosed Disease From Discrimination: A Survey”

  1. Teresa says:

    I want to take survey. I don’t have any under age children now but i went through some of these experiences with my child that is now 26. I think you should have a survey for parents that have been through this

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