Sophia was born via c-section at 35 weeks due to almost no amniotic fluid and failing kidneys. Sophia is diagnosed with having Vacterl Syndrome. She does not have all the conditions which fall under having this syndrome though, and the doctors said you need to have at least three of the conditions. When Sophia was born, she was barely breathing and was placed on a ventilator.

She also is having some bowel issues and urinary issues and recently is having heart pvc’s. She was born with one kidney, which is cystic and isn’t functioning. She has underwent 21 surgeries already and will need more– including a kidney transplant later down the line. She currently receives dialysis and has been in the hospital since birth.

Sophia’s parents were advised it was BEST to abort Sophia or, the doctors said, she would die in utero.. they said IF she made it through the pregnancy, that Sophia would have ZERO lung function, but Sophia proved them wrong. She was on 0.2 liters of oxygen! After 235 days in the hospital, Sophia went home. It was short lived… Sophia was home for just over a month and was back in the hospital for RSV… the past three months have been a roller coaster.

Sophia had a pulmonary bleed, two coding events, and several fractures due to non-movement. She has proven time and again she is a warrior! Sophia has PROVED that she is NOT a statistic and that GOD has BIG plans for her ♥ With our faith in God and prayer, we know it will all be all right!

3 thoughts on “Sophia Born with Vacterl Syndrome Proves Doctors Wrong”

  1. abbey roberts says:

    I had my daughter lily – Mae when she was 36 weeks. I had a normal pregnancy and everything seemed find when she was born until she was thoroughly examined and they realised she had vacterl association. she has an imperforate anus and a temporary colostomy bag which will be reversed, she also has the absence of her right thumb and a right hand deformity, her right forearm bone is missing causing her hand to slam side wards, she also had vertebrate abnormalities as some of the bones have fused together…I couldn’t believe that my tiny 5lb baby was being transferred to a London hospital more than two hours away from our home…me and my partner stayed with lily – Mae whilst she had her operations and we were placed in the Ronald Mcdonald house whigh was extremely helpful…We were only there for three weeks but it felt like a lifetime. Lily Mae is having corrected surgery on her anus and removing the colostomy bag is the next step. she will then have corrective survey on her arm and thumb…but she is the happiest and most beautiful girl in the world and I couldn’t be prouder…

  2. tiffany ledbetter says:

    In loving memory of my daughter Imani Jeanette Hypolite ,3/31/2014 12/15/2014..

  3. Liz says:

    I know this is 4 years later, but I really needed to read this, I’m 21 weeks and my baby is diagnosed with vacteral or vater H syndrome and i keep reading stories about people terminating the pregnancy and I just cant, I love this little girl, and I want her to be happy, so thank you

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