Rare Chromosome Disorder Awareness Week (RCDAW) is coming June 2 – June 8 2014.

“On behalf of Chromosome Disorder Outreach and Unique, I would like to introduce you to an idea that began a few months ago and has since blossomed into an initiative planned for 2014,” says CDO President, Linda Sorg. ” We are in the preliminary stages of planning for an annual “Rare Chromosome Disorder Awareness Week.” Rare Chromosome Disorder Awareness Week will be celebrated globally to educate and increase awareness about rare chromosome disorders.”

This celebration of awareness would be the first week of June each year (June 2-8 for 2014). During this week, affected individuals, families, friends, support groups, co-workers, non-profit organizations, and others would join together to sponsor a variety of events to promote outreach and education about chromosome disorders.

RCDAW is a joint effort of Chromosome Disorder Outreach Inc. here in the United States and the Unique Rare Chromosome Support Group in the United Kingdom. Many thanks to CDO members, Jim & Natalie Bond, for introducing this idea.

CDO will soon be launching a brand new website but in the meantime we have created a page where you can go for more information. You can download the new RCDAW logos, purchase t-shirts, beautiful bookmarks and more. This is simply our demo awareness site. Functionality is limited but the links on the awareness page should be working.

4 thoughts on “Rare Chromosome Disorder Awareness Week Coming in June 2014”

  1. Maranda Morris says:

    My son Arlington has 22q11.2 chromosome disorder aka DiGeorge syndrome and autism

  2. Heather Berry says:

    Hi, I have a 3 year old daughter n her name is Aubree and she was diagnosed with 5p- (missing half of chromosome 5p and also she has a duplicate of chromosome 14!!
    SO SHE’S DIAGNOSED WITH Cri Du Chat or also known in French cry of the cat!!!!

  3. Melissa says:

    My son is almost 5 his name us seth he has a translocation a piece of chromosome #5 detached and attached on #14 we have no name no syndrome found out yet we know nothing. No other kids found with the same as him to the same degree.

  4. Gina Vieira says:

    My daughter Samantha was diagnosed 1p36 when she was three years old. She is nine years old now…She can walk but may never run, she can read but may never talk but despite all that she is the most happiest child that anyone would meet. I’m so proud of her!

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