Wyatt is a blue-eyed, bubbly, 11-month-old baby. But the Ottawa boy suffers from a rare disease that locks his jaw, stopping him from eating, drinking, and speaking. His mom Amy Miville knew there was a problem right away.
“It was right when he was born. It’s part of the nurse protocol to check for the palette and she tried to insert her fingers into his mouth and she couldn’t,” Miville told Global News.
That same day, the mother and son were checked into the Children’s Hospital of Eastern Ontario. Wyatt spent three months there as doctors uncovered the baby’s rare disease.
He was born was congenital trismus, which has locked his jaw, according to Dr. Kheirie Issa, a CHEO pediatrician specializing in complex care. Trismus is a condition that restricts movement in the jaw. Lockjaw is one form.
“[The disease] is pretty rare because obviously when we first met Wyatt early on…there was barely any literature for congenital trismus,” Issa said.
Through genetic testing, the doctors were able to rule out any other syndromes that might be affecting the baby’s health. No one knows what’s causing the trismus.
Since his birth, Wyatt has been feeding through a nasal gastric tube. He has trouble moving his facial muscles, and his eyes don’t always blink at the same time, Miville said.